Showing posts with label leukemia. Show all posts
Showing posts with label leukemia. Show all posts

Wednesday, November 11, 2009

It's that time again

when I don't know if we should "celebrate" that date or not. Six years ago today, our world was turned upside down: Pierre was at the hospital with leukemia. I wrote about it last year: the story of a boy . You can click on the story of a boy if you are not familiar with his story. He finished his treatment in febuary 2006. It still feel like it was yesterday. I still get scared from time to time, especially if he gets weird bruises on his body or if he's more tired than usually. I do try rationality to explain why he's feeling tired or why he has bruises but my brain is not very friend with reationality. My brain best friend is fear and it's hard to control fear ... very hard. That's a date I can't forget and like he got sick during a holiday, it's even easier to remember ... but I don't need a special date to remember don't I ?



Even though he's fine now, he still struggles at school. This year, we also " celebrate" 10 years of speech therapy. Imagine 10 years ! I never imagined he will still go to speech therapy at 13 years old. He just finished some testing with the neuro psychologist in order to see if there are any progress with the therapy. It will take a while to get the results but she said she already saw some progress which is positive.





2004





2009



I am having lots of fun stitching my Lanarte !!! Why am I feeling I am making so much progress with it while I was stitching so slow on the banner?
I want to thank you for your birthday wishes and for having happily danced with me for my latest finish !!! You always make me smile !!! Thank you!

Tuesday, November 11, 2008

The story of a boy

This is the story of a boy who had a difficult start in life

but he was a fighter and we thought it was all over even though we had a lot of worries for him. Here he was with Emma during the summer of 2003.
Then on november 11 th of the same year, our life crashed down: Pierre's life was in jeopardy. This time it was leukemia ... And the treatment started. The oncologist told us treatment always lasted for at least 2 years Soon after, Pierre's hair started to fall down but even though I had taken him to the hair dresser, I didn't realize he looks funny with some hair left on his head ... My skinny boy was not skinny anymore: he had big cheeks, a double chin and a swollen body.
After the first round of chimio, hair started to grow again but we knew it was going to fall again after the second round of chimio. It may seem silly to think of hair in these kind of moments but falling hair is the most visible sign of the illness.
After that, his hair all fell out and I had a bald 7 years old with no eye lashes, no eye browns ... Hat was now necessary to go out but sometimes he didn't want one and we were going out without. Of course, people were starring but he didn't care too much.

I like this picture: still the same without hair . It was a happy time during this hard time: Chuy has came back from the US. When a child has cancer, you don't know at first if you will take pictures and then you come to the conclusion that it is an event that will always be a part of your life.
In august, something was starting to come back: yep, the hair First we started to notice something different in Pierre: the eyes lashes grew first. It was the first sign, my boy was going to look like himself again. Admire his perfect skull
And here is a picture of Pierre all hairy His swelling was starting to disappear and he had lost his big cheeks. He was almost the same except that now, he has more hair that before His treatment was not over but it was lighter.
Today we have reached a milestone: he got sick five years ago. It is a long time ago but it still feels like yesterday. There are dates we can never forget ... We still don't know what the future holds for him but we can always hope for the best ....

I want to thank you all for the birthday wishes. You really warned my day . I didn't get gifts, like always, but it was nice you thought of me !!!

A stitching update: I finally started my fuchsia .... I know I'm soooooooooo weak but I couldn't stand the map anymore Of course, it is such a pleasure to stitch a Lanarte again I love it and I feel I making giant progress everyday !!! The colours are so bright! I know I didn't finish the treasure map but I promised myself to stitch on it once a day (hope I can keep my promise ... )